Showing posts with label Recent. Show all posts
Showing posts with label Recent. Show all posts

Sunday, November 1, 2009

Off Topic: Halloween

Hi all. I'm still involved in a couple of outside projects, but wanted to post, since I haven't in a while. I know my posts are usually, strictly autism-related. But just this once, I wanted to share just a little.This was the first year we dared to take Nolan trick-or-treating and, aside from a little trouble getting him to adjust to the costume, it all went off without a hitch. There was a little rain --- not a hard rain, though. My wife called it "memory-making!"


Anyhow, he was adorable, and his sisters looked pretty good, too. Let me know what you think of everyone.


Sunday, September 20, 2009

Dealing with Autism in Public: An Open Letter to "That Mom"

A reprint of an article I published on the user-produced site Associated Content
"The other day that mom with the little boy who was making so much commotion in the fast food restaurant noticed you staring at her. He was a handful, wasn't he? His screaming was incessant and the way he was challenging his mother: unacceptable. It's understandable that you would never allow your own child to holler at you like that, or bounce between the booths. You found yourself wondering what would possess her to bring an unruly child like that out into public in the first place.

As your respectful children stood beside you in silence, you wondered when he would just be quiet. And you wondered what kind of mother she must be. If you only knew what that mom wonders.

She wonders what she can do to get him to stop screaming. Sometimes it lasts all day, and lately, it's been almost every day. Then, while you put your kids back in the car, she wonders if he'll keep his seat belt on for the entire ride. You will get them home and they'll head right upstairs to play together nicely. She wonders if he'll decide it's time to begin switching the lights on and off repeatedly, or throw to everything that's on the desk onto the floor.

When your kids fall down, you can ask them where it hurts and they can tell you. It hurts the other mom that all she can do is hold her little boy and wonder when he'll stop crying. Later, while you wonder what story you will read to your child tonight, the mom you know nothing about will once again cry herself to sleep in her husband's arms.

You wonder later why God would give any child to "that kind" of parent, yet she's thankful that God chose her. You judge the stranger based on that one incident, while she wonders why you didn't just ask if you could help. She probably wouldn't have taken it, but she would have appreciated the gesture.

Your four-year-old has mastered the art of conversation. She finds it triumphant that her son mumbles, "go school" and "want eat." You already wonder what your child's high school prom will be like. Meanwhile the other mom wonders when her four-year-old will potty train. You wonder who your little one will marry some day, while the mom with the rambunctious son worries that he may not graduate from high school. You plan to send your child to the best university, and the lady that you never met wonders if she'll have to care for hers as an adult.

While she's not jealous that your kids obey, talk and dream, she does wonder what it would be like to be able to call her son "normal." He is who he is. There's no altering that, and his mother wouldn't change him for the world. But feeling your eyes burn through her melts her soul. She does the best he can, and wonders why you judge them both. She doesn't ask for your sympathy, just your understanding.

Her family puts a lot of time and effort into helping him become the best somebody he can be. You don't see it, but that's all right, because his mom sees it every day. She sees the victories as well as the defeats. You cast your judgment based on the one day you saw the unruly child in public. No one faults you for that, because the other mom used to do the same thing, back before her son's diagnosis. All the mom asks of you today is compassion and consideration.

Tonight, when you tuck your kids into bed, be thankful for the children you have and for who they are. Understand that, while you are getting butterfly kisses from your little angel, there are parents wondering when theirs will be able to say the words, 'I love you.'"
~Jon

Sunday, May 10, 2009

Celebrate the Spectrum Finale

Autism Awareness Month is behind us now; the conference speakers have packed up their projectors, the empty bottles have all been counted, volunteers have all gone home and we get to take a little break for a couple months. But all in all our Celebrate the Spectrum was a wonderful success; we look so forward to next year.

And Same Child, Different Day took the spotlight the final evening. But what was to mostly be a night of me reading from the booklet turned into a wonderful sharing session. Heidi spoke at length about her son Eli, and the pictures she provided were a wondeful touch. Jen shared a poem she wrote which made everyone cry. My Mom shared a newspaper article with a very positive outlook. Mike gave an anecdote that was also quite inspiring. And several others joined in the converation as well.

That's what it's about, after all: the sharing and support we all give each other as loved ones experiencing the same "different" days. Sure, all our kids are at different places on the spectrum. Some of us embrace the public and can't wait to enlighten others. Then there are those families however, who have decided that home is the best place to stay; and maybe these events didn't change that way of thinking at all. We're hopeful that they did, but if not, our number one goal was to show you that we're in this together.

No two ASD kids are alike, and it's those differences that bring us together. If all we showed our new friends is that they have someone to turn to, then the entire month was worth it.

Either way, see you next April!

~ Jon

Tuesday, April 7, 2009

"Same Child, Different Day" Goes Global

I'm very excited that Same Child, Different Day has reached around to the other side of the world. I was contacted recently by a group in South Africa asking about our little booklet. To our new-found friends, thanks for your support and welcome to Same Child, Different Day; if it helps even one family, then "Misson Accomplished". To all the rest who have supported us so far, I have to tell you that none of this would be possible without you!

Monday, April 6, 2009

Our New Web Page

Here's just a short note to ask you to please check out the new web page for Exceptional Parents of Exceptional Children (EPEC), www.geocities.com/rutlandepec or you can click here!

Thursday, April 2, 2009

'Celebrate the Spectrum' Radio Interviews

April 1st marks the beginning of National Autism Awareness Month. Begun in the early 1970's by the Autism Society of America, the nation now recognizes April as a special opportunity for everyone to educate the public about autism and issues within the autism community. Along with that, my own local support organization, Exceptional Parents of Exceptional Children (EPEC) is pleased to roll out 'Celebrate the Spectrum': a month-long series of events, activities and talks aimed at sharing our lives with our community.

To make folks aware of this month's activities, my EPEC co-chair (Heidi) and I set out on two radio interviews: one locally with our most popular radio station (Mix 98.1/WJJR) and a smaller, independent station in our queen city of Burlington (105.9/The Radiator). On separate occasions Heidi and I have both been on the program (The Next Frontier) with the host Anne Barbano, who also produced a wonderful video called "Living the Autism Maze" (check it out here).

To listen to our talk about 'Celebrate the Spectrum' and also how Heidi's National Guard duty affects her relationship with her son, please click on this link (interview). The page takes about a minute or so to load, so please be patient. Of course, I talk about Same Child, Different Day, too!

~ Jon

Wednesday, February 11, 2009

Autism Radio Interview

I mentioned a while ago that we were supposed to present Same Child, Different Day during a radio show last month. Anne Barbano is a director, writer and producer of a presentation called Living the Autism Maze, and is the host of a local radio talk show. She headlines 105.9 - The Radiator's "The Next Frontier", an autism-focused program that "strive[s] to educate, inform and create opportunity for a community that may not always have access to inclusionary experiences."

However, our January 14, 2009 show to talk about the booklet did not record; can you believe it? Anne was nice enough to put a little blurb about it, with a link to this site, but it would have been wonderful to be able to provide you with the listening link here.

No matter, if you'd like to talk about the show, writing booklets, or anything autism-related, please drop me a line.

~ Jon

Monday, December 22, 2008

Help for a Recent Autism Diagnosis

We live in central Vermont, in an area that's easily an hour away in any direction from the nearest Interstate highway. Our small state is only pierced by two of these international thruways and, unlike many of our neighbors, rest stops are few and far between. As a matter of fact, on these limited access highways, there are only a couple of manned information points and to miss one can literally mean you've missed them all.

There are information booths in most of our picturesque our towns, and many businesses support racks of free giveaway guides. But sometimes you have to travel miles off the beaten path to find the kiosks or get good directions. And sadly, Vermont probably coined the phrase "You cain't get they'uh from hea'yuh". More sadly: while you're looking to find where you're going, you can miss a lot of the beauty that's right beside you.

What does that have to do with anything? Well, it's true that this blog is about our autism booklet Same Child, Different Day. But I also want you to know that we are available to you as a resource. For those just hearing that your little one has autism can be utterly overwhelming. We want to be your Welcome Center rest stop on this mapless, sign-free highway.

You have hundreds of questions, and hundreds of places to look for answers. There's such an overload, you may even find that you need to pull over to the side of the road and cry. But if you pull in right now and ask for directions, we can give you the insight of a family living the difference. Slip off the information superhighway and send us an email (jongilbert@rocketmail.com); we'll answer your questions --- and if you'd prefer to talk as opposed to electronic words, we can make arrangements for that.

We don't want you to feel that this is the end of the beginning, or the beginning of the end. You are at the beginning of the beginning: the Welcome Center. The autism journey is a crooked road rife with hair-pin curves, dead ends, forks, cliffs, hills and valleys. Hardest of all, most of us don't even know exacly where we're going.

Let us know if you'd like to carpool.

~Jon

Thursday, December 18, 2008

Welcome to Same Child, Different Day

Same Child, Different Day: One family's experiences during the first year after a child's autism diagnosis is a 50-page booklet that was written by the father and family of a child with autism.

The title refers to the essence of the experience: Though your life and lifestyle will be an ever-changing journey, nothing about your child is any different, simply because of an autism diagnosis. The manual is meant to provide some insight into what you might experience during this first confusing year. It in no way shows what will definitely happen to your family or your child or suggest what you are bound to experience; but it does share with you some of what we encountered. Of course, your results will vary.

In Same Child, Different Day you'll find:
[] Casual, entertaining (and sometimes even humorous) anecdotes
[] Practical information from parents dealing with autism every day
[] Useful concepts and terms you are likely to encounter
[] Encouraging suggestions to help you get through each day
[] A starter list of useful references you should find helpful
[] And much more

If you're part of a group or organization serving families of autistic childern --- or you simply have more questions about this informative booklet, please send an email to: jongilbert@rocketmail.com for answers, pricing and bulk ordering information.